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July 2009
July 2009
About The Author
- Karen
- After almost a year trying to find answers, my baby boy was finally diagnosed with Netherton Syndrome in 2008. There are very limited information about this disorder in the Web and the ones available are mostly written in confusing medical jargon that perhaps only someone who has medical school background can comprehend. This space is my attempt to keep track of this rare genetic disorder by writing about our own experiences in managing his ailment. I hope to find other families who are in the same situation as us - there is strength in number.
Bambino Halloween
Better Days
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