Glad to see that things are going really well :) Thanks for your comment on my blog as well. It really means a lot especially since I'm going through such a hard time.
After almost a year trying to find answers, my baby boy was finally diagnosed with Netherton Syndrome in 2008. There are very limited information about this disorder in the Web and the ones available are mostly written in confusing medical jargon that perhaps only someone who has medical school background can comprehend. This space is my attempt to keep track of this rare genetic disorder by writing about our own experiences in managing his ailment. I hope to find other families who are in the same situation as us - there is strength in number.
1 comment:
Hey Karen!
Glad to see that things are going really well :)
Thanks for your comment on my blog as well. It really means a lot especially since I'm going through such a hard time.
See you tomorrow :)
Hugs! Erika
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